Healthwatch Cornwall launches dementia and memory loss research project

If you are a carer and provide support to someone living with dementia or memory loss (suspected dementia), talk to us about your experiences of services and support in Cornwall
Dementia carers research

Click here to take survey

Dementia is a progressive disease impacting memory, language, behaviour, and mobility. It is estimated to affect one in 14 of all people over the age of 65 in the UK. Carers are often family members, a relative or friend. They play a critical role in caring for people living with dementia, including with day-to-day life, personal care, practical help, and making health care and financial decisions on their behalf. 

We understand some of the many challenges faced by carers and people living with dementia and memory loss in Cornwall. We are conducting research to learn about experiences of dementia services in Cornwall, and the role services play in supporting people living with dementia, and their carers. This research is being undertaken in partnership with the Cornwall Memory Cafe Network and system partners. It will help us to improve services in the future.

Our aims of this research project are to:

  • understand the experiences of carers of people living with dementia and those they care for, from pre-diagnosis of dementia and throughout their caring journey
  • understand and learn from their experiences and preferences of accessing care and support for themselves and the person they care for, in order to shape service improvement and provision locally

Healthwatch Cornwall is the health and social care champion for people in Cornwall. Your story really does have the power to make a difference, and feedback about your experience is invaluable to help us improve services for people in the county.

If you are a carer of someone with dementia or memory loss, we would really like to hear from you.

Please take part in our survey by clicking the link below.

Click here to take survey

Alternatively please call T: 0800 0381 281 or email for alternative formats.

Dementia survey print version download
We've been working with Healthwatch Cornwall on this important topic, and look forward to using the feedback to improve local services for people living with dementia and their carers.
— Dr Allison Hibbert, System Clinical Lead for Dementia, NHS Kernow CCG and Chair of Cornwall Dementia Partnership Board

If you need help and support, the organisations below can be contacted to help:

Cornwall Carers

Adult carers in Cornwall are supported to self-manage via an advice line run by disAbility Cornwall, where there is enhanced support when you need it. There is a dedicated team available to answer Carer calls and queries, text-to-chat options, support to access a Carers Emergency Card, Carers Passport, Carers Register and Carers Newsletter. / T: 01736 756655

Age UK

Age UK Cornwall & the Isles of Scilly have Carer’s Coaches and Community Support available to help carers to connect with their communities and to improve their wellbeing. / T: 01872 266383

Other organisations that can provide support:

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