Dementia is a progressive disease impacting memory, language, behaviour, and mobility. It is estimated to affect one in 14 of all people over the age of 65 in the UK. Carers are often family members, a relative or friend. They play a critical role in caring for people living with dementia, including with day-to-day life, personal care, practical help, and making health care and financial decisions on their behalf.
We understand some of the many challenges faced by carers and people living with dementia and memory loss in Cornwall. We are conducting research to learn about experiences of dementia services in Cornwall, and the role services play in supporting people living with dementia, and their carers. This research is being undertaken in partnership with the Cornwall Memory Cafe Network and system partners. It will help us to improve services in the future.
Our aims of this research project are to:
- understand the experiences of carers of people living with dementia and those they care for, from pre-diagnosis of dementia and throughout their caring journey
- understand and learn from their experiences and preferences of accessing care and support for themselves and the person they care for, in order to shape service improvement and provision locally
Healthwatch Cornwall is the health and social care champion for people in Cornwall. Your story really does have the power to make a difference, and feedback about your experience is invaluable to help us improve services for people in the county.
If you are a carer of someone with dementia or memory loss, we would really like to hear from you.
Please take part in our survey by clicking the link below.
Alternatively please call T: 0800 0381 281 or email email@example.com for alternative formats.
If you need help and support, the organisations below can be contacted to help:
Adult carers in Cornwall are supported to self-manage via an advice line run by disAbility Cornwall, where there is enhanced support when you need it. There is a dedicated team available to answer Carer calls and queries, text-to-chat options, support to access a Carers Emergency Card, Carers Passport, Carers Register and Carers Newsletter. www.cornwallcarers.org.uk / T: 01736 756655
Age UK Cornwall & the Isles of Scilly have Carer’s Coaches and Community Support available to help carers to connect with their communities and to improve their wellbeing. www.ageuk.org.uk/cornwall / T: 01872 266383
Other organisations that can provide support:
- www.alzheimers.org.uk / T: 0333 150 3456
- Dementia UK (staffed by Admiral Nurses): T: 800 888 6678 or email: firstname.lastname@example.org
- Mind (for mental health information and support): T: 0300 123 3393
- To find your local memory cafe: www.cornwallmemorycafes.co.uk or phone Cornwall Memory Cafe Network Coordinator on: T: 01736 697459